Before Micah was diagnosed, Booth and her husband Mike Quinones had started an Instagram account for him called "Life with Micah" as a way to share photos with friends and family. Soon, more and more followers came, finding it through Booth's own already-popular Instagram account. The transition to modeling was natural; Booth says that Micah looks right into the camera as soon as it comes out, and that everyone tells him he's just like his mother. The Instagram account didn't start out as an advocacy project, Booth notes, but it continued to grow in popularity after Micah's diagnosis, and he now has more than 39,000 followers.
Micah's parents were first told that he might have Down syndrome by a nurse soon after his birth, who suspected the condition after noting Micah's almond-shaped eyes and folded ears. Since these features could have been genetic or a result of complications during the pregnancy, however, Booth and her husband didn't see the need to take the four vials of blood from their newborn that would be needed for the test. There had been no indications before Micah's birth, either; he displayed none of the heart defects many babies with Down syndrome have, and Booth and Quinones had opted not to do a prenatal screening, agreeing that the results wouldn't change anything.
At their pediatrician's recommendation three months later, however, they did have the test completed. Booth says that while she shed some tears and was scared at the diagnosis, not personally knowing anyone with Down syndrome, she soon realized that no number was going to change what she thought about her son.
Booth has also said that one of her goals in sharing photos of her family is to bring hope to other families who are also affected by Down syndrome. Connecting with such families through Instagram has been very helpful for her, she says, and has enabled her to follow along with their journeys and milestones as she experiences her own. Already called a spokesperson for Down syndrome-related causes by Mother Magazine, Booth still says she hopes that her involvement in the community will continue to grow.
You can follow Micah on Instagram here, and learn more about his and his family's story in Mother Magazine, Today.com, ABC news, Pregnancy & Newborn, and Buzzfeed.
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